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The ethics of research biobanking [electronic resource] / edited by Jan Helge Solbakk, Søren Holm, Bjørn Hofmann.



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Publication date:
Dordrecht ; London : Springer, 2009.
  • Book
  • xviii, 357 p. : ill. ; 25 cm.
Includes bibliographical references and index.
  • Pt. 1. Research biobanking : the traditional approach
  • Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
  • What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan
  • Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen
  • Information rights on the edge of ignorance / Anne Maria Skrikerud
  • The dubious uniqueness of genetic information / Anne Maria Skrikerud
  • Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin
  • Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler
  • Biobanks and our common good / Erik Christensen
  • Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand
  • Scientific citizenship, benefit, and protection in population-based research / Vilhj́almur Árnason
  • Pt. 2. Research Biobanking : towards a new conceptual approach
  • Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
  • The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
  • The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth
  • The art of biocollections / Anne Hambro Alnæs
  • The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg
  • Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer
  • Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
  • Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria
  • Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning
  • Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand
  • In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand.
Electronic reproduction. New York : Springer, 2009. Mode of access: World Wide Web. System requirements: Web browser. Title from title screen (viewed on Oct. 12, 2009). Access may be restricted to users at subscribing institutions.
Solbakk, Jan Helge.
Holm, Søren, 1963-
Hofmann, Bjørn.
SpringerLink (Online service)

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